Our Approach to Research
ALS Arizona backs research that is inclusive, accessible, and driven by real-world needs. Through partnerships like ALL-ALS, we help accelerate discovery while supporting Arizona families every step of the way.
You Are Part of the Solution
Your participation and support will help ALS Arizona fund research to find treatments and drive for a cure to END ALS.
- A nationwide NIH-funded effort making ALS research inclusive and accessible.
- Two observational studies—PREVENT (people at genetic risk) and ASSESS (people living with ALS + healthy comparators)—build a large, shared research resource.
- Participation can be in-person or remote, lowering barriers and speeding discovery.
Who is Eligible
People living with ALS
Family members and caregivers
Individuals without ALS who want to contribute as healthy volunteers
Remote participation available if you’re not near a site
What to Expect
Short in-person and/or remote visits
Collection of clinical data, blood samples, and optional CSF
Simple speech tasks and questionnaires via online portal
Get an overview of ALL-ALS, study updates, and practical details about participation.
- Oct 1, 2025 — 5:00–5:30 PM ET
- Jan 7, 2026 — 5:00–5:30 PM ET
Webinar Registration links are available here.
Questions: info@all-als.org
ALL ALS Research Studies
Increasing Access for all in ALS
The ALL ALS Consortium is currently enrolling people living with ALS, their families, friends, and caregivers, and individuals genetically at risk for developing ALS into two observational research studies, ASSESS and PREVENT.
The primary objective of the studies is to compile the largest collection of patient clinical data and biological samples collected to date into two central repositories. Through such efforts, researchers will have increased access to critical data and biosamples which will ultimately advance our ALS understandings and pave the way to development of more effective drugs and therapies.
Learn more about ALL ALS by visiting their website at all-als.org, emailing the Patient Communications Department at info@all-als.org, or contacting an ALL ALS site-specific coordinator by email. Together, we can make a difference!
National ALS Registry
The National ALS Registry may be the single largest ALS research project ever created and is designed to identify ALS cases from throughout the entire United States.
Northeast ALS Consortium (NEALS)
NEALS' mission is to rapidly translate scientific advances into clinical research and new treatments for people with Amyotrophic Lateral Sclerosis (ALS) and motor neuron disease.