ALS Patient Registry
Patient Registry
An ALS Diagnosis can be overwhelming, confusing, and frightening. If you have received an ALS diagnosis, you probably have A LOT of questions about the disease, the prognosis, and the treatments available. Our staff collaborates with medical professionals who specialize in ALS to coordinate medical care and community resources to address your family’s un-met needs. We educate on disease progression and symptom management so you can make informed decisions about your care, we provide equipment that maintains safety and independence free of charge, and we help create a community of supportive peers, ensuring that your family does not face these challenges alone. We invite you to register with us so we can offer free programs and services to help you and your family navigate these challenges.