ALS Education Funded by MESA HOHOKAMS

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Home and Daily Living Guides

Welcome to our ALS Home and Daily Living Guides. These practical resources are designed to help people living with ALS improve their daily quality of life. They also support both family and paid caregivers by providing the knowledge, skills, and tools needed to deliver the best possible care.

(click each section for more information)

ALS Care Options

Options for finding additional care and support

ALS Home Safety

Find ways to be safe and maintain your independence

Advocating for Yourself

Advocating for yourself can help you get the best care possible

Advance Directives

Let everyone know what type of medical treatment you would —or wouldn’t—want in the event of a medical emergency

Caring for Your Caregiver

Find Additional Support When You Need It

Veterans Living With ALS

Eligible Veterans can receive critical benefits

Sharing Your Diagnosis

Deciding how you to tell family and friends of your diagnosis

Participating in Research

Researchers around the world are conducting trials and studies, collaborating, and making important progress

Hospice Care

Hospice provides quality of life

Finding Quality of Life

It is still possible to live with purpose, meaning, and joy after your diagnosis

Feeding Tubes for ALS

A feeding tube can help you safely get the calories, nutrients, and hydration your body needs

Employment and ALS

Answering your employee insurance questions

Eating and ALS

ALS Food Safety and Modifications

Early ALS Symptoms

Early signs of ALS are different for everyone and can begin in different parts of the body

Coping with Your Diagnosis

ALS clinics and organizations can help guide and support you

Communication Options

It is helpful to learn about alternative forms of communication

Bathing and ALS

There are a number of strategies and devices that can help you get clean while staying safe

Approved Drugs for ALS

Drugs for ALS that have been approved by the U.S. Food and Drug Administration

Alternative Treatments

Some people look for alternative treatments that could cure, reverse, or slow progression of the disease

ALS Nutrition

Develop strategies to eat and drink well

ALS Mental Health

Tending to your mental health can have a positive impact on your day-to-day quality of life

Caregiver Self Care

It is very important to remember to take care of yourself