ALS Arizona State Advocacy Day
Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. Over time, ALS leads to the loss of motor neurons, which are responsible for muscle movement, ultimately resulting in paralysis. ALS Facts: 🔹The average life expectancy after diagnosis is 2…
ALS Arizona is proud to be part of ALS United, a groundbreaking coalition of 15 independent ALS organizations working together to accelerate progress in the fight against ALS. This collaboration marks a new chapter in our mission, allowing us to amplify our impact while continuing to serve the ALS community with the same dedication and…
ALS Arizona had an incredible evening at the Tucson Roadrunners’ ALS Awareness Night, where the team helped bring much-needed attention to ALS and our mission. One of our ALS community members had the honor of performing the ceremonial puck drop, setting the stage for an exciting matchup between the Roadrunners and the Ontario Reign. Throughout…
ALS Arizona recently partnered with Target ALS to bring groundbreaking research directly to our community. In a unique pop-up research clinic set up in our courtyard, people living with ALS, as well as those with a personal connection to the disease, had the opportunity to contribute to scientific progress by donating blood and saliva samples.…
At ALS Arizona, we understand that caregiving for a loved one with ALS comes with unique challenges. That’s why we host Caregiver Skills Workshops—interactive sessions designed to equip caregivers with practical knowledge, hands-on training, and valuable resources. In February, we welcomed caregivers in the Phoenix area for a day of learning and support. Topics covered…
We are beyond thrilled to share that one of our incredible pALS (person living with ALS), Garrett Hamlin, has been featured as the cover star and “Overcomer of the Year” in Northern Arizona Real Producers magazine! 🎉 Garrett’s journey is nothing short of inspiring. A dedicated U.S. Army veteran, commercial pilot, IT network engineer, real…
ALS Arizona is proud to welcome Dr. Robert Bowser as the new Chair of our Board of Directors! Dr. Bowser brings a wealth of knowledge, leadership, and passion to our mission of improving the lives of those affected by ALS while advancing research for a cure. Dr. Bowser, PhD, is a globally recognized leader in…
We are thrilled to announce that the Live Like Lou Iron Horse Scholarship is now accepting applications! This incredible opportunity is designed to support the next generation of leaders while honoring the legacy of those who have been impacted by ALS. The scholarship provides financial assistance to college-bound students who have been directly affected by…
Last week, our Care Services Team hosted an insightful ALS Education Series presentation on Five Wishes, the nation’s only national advance care planning program. For more than 25 years, Five Wishes has helped individuals and families navigate important healthcare decisions with clarity and peace of mind. During the session, Janie walked participants through each section…
When faced with an ALS diagnosis, the initial shock can feel overwhelming—much like the icy jolt of the Ice Bucket Challenge. But just as that viral movement spread awareness and hope, there are ways to navigate this journey with strength, support, and resilience. ALS Arizona volunteer and Ph.D. student Amanda Kehrberg explores how newly diagnosed…