Phoenix Bite Nite 2025

ALS Education Series: Understanding Five Wishes

February 10, 2025 Comments Off on ALS Education Series: Understanding Five Wishes

Last week, our Care Services Team hosted an insightful ALS Education Series presentation on Five Wishes, the nation’s only national advance care planning program. For more than 25 years, Five Wishes has helped individuals and families navigate important healthcare decisions with clarity and peace of mind. During the session, Janie walked participants through each section…

Finding Hope After an ALS Diagnosis: A Feature by Amanda Kehrberg

February 6, 2025 Comments Off on Finding Hope After an ALS Diagnosis: A Feature by Amanda Kehrberg

When faced with an ALS diagnosis, the initial shock can feel overwhelming—much like the icy jolt of the Ice Bucket Challenge. But just as that viral movement spread awareness and hope, there are ways to navigate this journey with strength, support, and resilience. ALS Arizona volunteer and Ph.D. student Amanda Kehrberg explores how newly diagnosed…

ALS Arizona’s President and CEO Featured in Frontdoors Magazine

January 30, 2025 Comments Off on ALS Arizona’s President and CEO Featured in Frontdoors Magazine

We’re thrilled to share that our President and CEO, Taryn Norley, is featured on the cover of the Winter 2025 issue of Frontdoors Magazine! This prestigious feature highlights Taryn’s extraordinary journey and leadership in transforming ALS Arizona into a lifeline for families navigating the unimaginable challenges of ALS. The article provides an inspiring look into…

Family Bowl-a-Thon Brings Community Together to Support ALS Arizona

January 29, 2025 Comments Off on Family Bowl-a-Thon Brings Community Together to Support ALS Arizona

When Bob Miller was diagnosed with ALS, a group of loving relatives came together to support and care for Bob. After his passing that same group rallied friends, neighbors and the local community for a day of bowling, fun, and fundraising. Fueled by their desire to make a difference, the event was a resounding success,…

A Heartfelt Thank You to Our Tucson and Scottsdale Walk ALS 2024 Sponsors

January 28, 2025 Comments Off on A Heartfelt Thank You to Our Tucson and Scottsdale Walk ALS 2024 Sponsors

As we reflect on the success of the 2024 Tucson and Scottsdale Walk ALS events, we are filled with immense gratitude for the incredible support we received from our sponsors. Their dedication to the ALS community has played a crucial role in advancing our mission to raise awareness and fund vital research for ALS. A…

Groundbreaking Medicare Directive Secures Access to Qalsody for ALS Patients

January 27, 2025 Comments Off on Groundbreaking Medicare Directive Secures Access to Qalsody for ALS Patients

In a historic move, the Centers for Medicare & Medicaid Services (CMS) announced a groundbreaking directive in December, ensuring that people living with SOD1-ALS and enrolled in Medicare Advantage plans can access the FDA-approved treatment Qalsody®. This decision marks a significant milestone in the fight against ALS, paving the way for equitable access to life-changing…

Keniston ALStars Golf Tournament: Driving Change for ALS

January 24, 2025 Comments Off on Keniston ALStars Golf Tournament: Driving Change for ALS

At ALS Arizona, we are inspired by the dedication of our supporters, and the Keniston ALStars annual golf tournament is a shining example of how community efforts make a difference. Each year, the Keniston ALStars come together to host this incredible event, raising vital funds to support ALS patients and their families. This past year’s…

Hom 100: A Community’s Dedication to Defeating ALS

January 23, 2025 Comments Off on Hom 100: A Community’s Dedication to Defeating ALS

The Hom 100 is an annual charity run, walk, and bike event held in memory of Tony Hom, a beloved father, husband, and friend who was taken too soon by ALS (Amyotrophic Lateral Sclerosis). This event brings together participants to honor Tony’s memory and raise funds for ALS Arizona, supporting research, patient care, and family…

Elizabeth Dole Home Care Act Passes Congress: A Major Victory for Veterans Living with ALS

January 23, 2025 Comments Off on Elizabeth Dole Home Care Act Passes Congress: A Major Victory for Veterans Living with ALS

We are thrilled to announce that the Elizabeth Dole Home Care Act (H.R. 542/S. 141) has passed Congress and is now on its way to President Biden for signature. This landmark legislation marks a monumental step forward in ensuring veterans living with ALS have access to the care they need, right at home. What This…

Silicon Desert Golf Tournament Swings for ALS Arizona

January 23, 2025 Comments Off on Silicon Desert Golf Tournament Swings for ALS Arizona

At ALS Arizona, partnerships fuel our mission to provide support, advocacy, and hope to those living with ALS. One of our most steadfast and generous allies is Silicon Desert Golf, a vibrant community of golf enthusiasts who come together each year to host the Silicon Desert Invitational benefiting ALS golf tournament in support of our…