ALS Education Series
Did you know? An ALS diagnosis is often just the beginning of a long list of questions. Many individuals and families leave that first appointment feeling overwhelmed—wondering what comes next, who to call, and how to take the next step forward. After diagnosis, support looks different for everyone. Some people want information right away. Others…
ALS does not follow a schedule—and neither does support. For individuals and families living with ALS, needs can change week to week, day to day. That’s why ongoing, year-round support is so important. At ALS Arizona, our work is centered on walking alongside families through every stage of the ALS journey, providing care, connection, and…
A new year often brings hope—fresh calendars, quiet resolutions, and the sense that something new can begin. For individuals and families living with ALS, the turning of the year can feel more complex. Hope doesn’t always look like big plans or bold goals. Sometimes, it looks like finding a place to belong, people who understand,…
Ready to ride with us in this year’s El Tour de Tucson? Registration is open now, and signing up is simple! Just follow the steps below, and be sure to select ALS Arizona as your charity of choice so your miles make an impact for families living with ALS. Our very own Kelly, who is…
We’re excited to announce a new observational ALS research program, the ALL ALSConsortium, which launched open enrollment in 2024. The ALL ALS Consortium includes twostudies: ASSESS and PREVENT. The ASSESS ALL ALS study is currently enrolling peopleliving with ALS, as well as “control” participants who tend to be their families, caregivers, andfriends. The PREVENT ALL…
At ALS Arizona, we understand that one of the most emotional and overwhelming decisions families face is finding the right place for their loved one to live—especially when their care needs begin to change. That’s why we’re proud to partner with trusted organizations like New Day Lifestyles, a preferred vendor committed to walking alongside families…
Last July, our organization launched the ALS Arizona Advocacy Committee, bringing together a dedicated group of individuals living with ALS, caregivers, clinical staff, board members, and ALS Arizona team members. Over the past year, the ALS Arizona Advocacy Committee has made significant strides in building relationships, raising awareness, and laying the groundwork for meaningful policy…
At ALS Arizona, we are always looking for ways to support our community of people living with ALS (pALS) by making everyday life more comfortable, accessible, and dignified. That’s why we’re proud to share our growing partnership with Many Bidets, a company dedicated to helping individuals find hygiene solutions that meet their unique needs—including those…
Did you know you can direct your state tax dollars to make a real difference for families facing ALS—all at no cost to you? Thanks to Arizona’s Charitable Tax Credit program, your donation to ALS Arizona can be claimed as a dollar-for-dollar credit on your state taxes. That means instead of sending your full tax…
We’re celebrating an important victory—and it’s because of you. The ALS community has secured a major advocacy win: the Department of Defense’s ALS Research Program (ALSRP) will remain funded at $40 million for fiscal year 2025. At a time when other Congressionally Directed Medical Research Programs faced devastating cuts, protecting ALS research funding is no…