Our advocacy work focuses on educating and mobilizing members of Congress, State Legislators, and the Federal and State government in a nonpartisan way to provide comprehensive support and advocacy for people with ALS and their families, while advancing research for new treatments and an end to ALS.
Click Here to Join our ALS Awareness Day at the State Capitol on March 19th!
Current State Action Alerts
Your story matters.
Each of these campaigns represents an opportunity to drive meaningful change for the ALS community not just here in Arizona but at the national level. Choose issues that matter to you and make your voice heard in Congress.
Expand Medigap Access in Arizona
Ask State Legislators to Support Access to Medigap
Ensure that people living with ALS under 65 have the same legal protected access to affordable Medigap plans as those living with ALS over the age of 65.
Action Item: Write your representative
Raise ALS Awareness in Arizona
Share with Legislators your experience with ALS
Whether you're living with ALS, a caregiver family member, friend , or clinician, sharing your story helps Arizona lawmakers understand the real needs of people affected by ALS and why action is needed now.
Action Item: Share your story
Current Federal Action Alerts
Protect ALS Research
Urge Congress to oppose NIH funding cuts
Research funding is the foundation of hope for breakthrough treatments and an eventual cure. NIH-funded research has led to every major advancement in ALS treatment and care.
Action Item: Write your representative
Support Family Caregivers
Ask your member of Congress to sponsor the Credit for Caring Act 2025 (H.R. 2036/S.925)
This bipartisan bill would provide a new federal tax credit of up to $5,000 for working family caregivers. Led by Representatives Linda Sánchez (D-CA) and Mike Carey (R-OH), and Senators Shelley Moore Capito (R-WV) and Michael Bennet (D-CO), the bill recognizes the vital role caregivers play while juggling jobs and family responsibilities.
With over 11 million Americans providing unpaid care for individuals living with chronic illnesses, this credit would offer meaningful financial relief and help strengthen families and communities.
Action Item: Write your representative
Expand Telehealth Access
Tell your members of Congress to sponsor the CONNECT for Health Act of 2025 (S.1261)
Telehealth is a lifeline for people living with ALS, offering safe, accessible care from home when mobility, breathing challenges, and fatigue make travel difficult. This legislation would make these vital services permanent by:
- Removing geographic restrictions and allowing the home to be an originating site
- Permanently authorizing health centers and rural health clinics to provide telehealth
- Expanding the types of healthcare professionals who can deliver telehealth services
- Eliminating in-person visit requirements for telemental health
- Allowing telehealth waivers during future public health emergencies
Action Item: Write your representative
ALS Arizona advocates for legislative priorities that will help to:
Find New Treatments and Cures
Optimize Current Treatments and Care
Prevent or Delay the Harms of ALS
Start Advocating Today
We need your voice to help bring change and hope for people living with ALS.