Become an Advocate
As an ALS Arizona advocate, you can help change the laws and policies that affect thousands of persons with ALS and their families. We amplify the voices of those intimately acquainted with the disease, their caregivers, healthcare and scientific professionals.
What is Advocacy and why is it important?
Advocate: noun
/ˈadvəkət/
1. a person who publicly supports or recommends a particular cause or policy.
ALS Arizona is championing policies aimed at improving the quality of life for individuals living with ALS, as well as their families and caregivers. Our advocacy efforts are firmly grounded in the voices and needs of those affected by ALS, as we strive to support and improve their daily lives.
Our strength emanates from the active engagement of ALS patients and their families in the advocacy process, which has yielded significant achievements such as increased federal funding for ALS research, the successful passage of the Medicare waiver for ALS patients, the establishment of presumptive disability recognition by the Social Security Administration, and award of Service Connected Veteran’s benefits from the VA to Veterans of the armed forces who are diagnosed with ALS.
How You Can Help
Our advocates are passionate about encouraging government officials at all levels - state, local, and federal - to improve awareness and resources for people affected by ALS.
Advocates affect real change in the way that our government responds to the needs of the ALS community.
Sharing your connection to ALS in person, over the phone, in an email or even a letter can help educate and mobilize our elected officials to take action! Advocates with ALS Arizona help change the laws and policies that affect all people with ALS and their families every single year.
Advocacy Highlight
ALS Arizona partnered with Arizona Chronic Care Together (ACT) for their Legislative Day at the Capitol on Tuesday, February 25th. A big thank you to Senator Tim Dunn and Senator Wendy Rogers for taking the time to meet with us.
If you'd like to meet with your local representative on our ALS Awareness Day at the Capitol on May 13th, please email deboni@alsaz.org.
